The children of our community are never forgotten.
SCN2A and the developmental and epileptic encephalopathies take some of the children this community loves. This page belongs to their families. It is a quiet place to say their names, to remember who they were, and to keep them part of us.
This space is separate from our Family Map. Everything here has been placed with a family's permission, and there are no public comments.
Their names, remembered
This space is here whenever a family wants it. Some families come to it soon, some after many years, and some not at all. There is no pressure and no time limit, whatever feels right for your family is right.
When a family shares a tribute and it has been reviewed together, it will appear here.
If you would like your child remembered here, we would be honoured.
Tell us about them in your own words. Take all the time you need, you can come back to this whenever you are ready.
Nothing you send is published straight away. A member of our team reads every tribute, checks the details with you, and only then does it appear.
Rather talk to a person?
You do not have to fill in a form. Our family support coordinator can take the tribute over email or a call, gently and at your pace.
Email our family support coordinator