The SCN2A family map · Australia

You are not the only family. Let's find each other.

SCN2A is rare, and Australian families are spread across a vast country. This map brings us together. Add your family, see how many families are in your state, and reach others near you, privately, on your terms.

Adding your family takes a short survey. You choose exactly what is shown and who can reach you.

Families on the map across Australia.

States & territories with families so far.

The map starts empty. Every number grows as families add themselves, be one of the first.

Families by state

SCN2A families across Australia

0The number in each state is how many families are on the map there0 families shown

Families on the map

Tap a family to see them on the map

Families will appear here as they join.

Once you complete the survey, your family becomes a card here and a pin on the map above.

How the map works

Three steps, and you decide every detail.

Fill in the short survey

Tell us your first name, your state and a little about your family. You choose what appears publicly, your suburb is shown as a general area, never your address.

We add your pin

Our team reviews each response and places your family on the map in your region. Your state's number ticks up by one. Pins are approximate by design, so no one can be identified by location.

Connect in your state

If you opt in, other families can send you a private message through us. Your email stays hidden until you decide to reply, you are always in control.

For bereaved families

When a child dies, you are still part of this community.

SCN2A and the DEEs take some of the children we love. If your family has lost a child, you remain one of us, for as long as you want to be. There is no time limit on grief here, and no expectation on you.

You can stay on the map, step back, or simply stay in touch. Whatever feels right for your family is right.

Talk to our family support coordinator

These conversations are gentle and at your pace. Nothing is shared without your say-so.

Keep your pin, in memory

Some families choose to remain on the map with a remembrance marker. Others prefer to step away. Tell us what feels okay, you can change your mind any time.

Meet families who understand

We can introduce you, privately, to other Australian families who have lived this particular loss, only if and when you'd like that.

Remember their name

We remember the children of our community. With your permission, we honour their names, at our gatherings and in our work.

Are you an SCN2A family in Australia?

One family's story matters. One hundred families on a map change what's possible, for connection, for research, for advocacy. Add yours.

Private, secure, and reviewed by our team before you appear.